December 14, 2008

Thinking Responsibily about the Drugs among Us

Category: Academic,Disability Studies,Ethics,Human Enhancement — Biella @ 12:51 pm

Next semester I am teaching a new undergraduate course tentatively titled “Technology, Society, and Media: The Body under Transition, in Movement, and under (Massive) Transformation(s).” As designed, the course should address technology and media in fairly broad stokes (which I do) but I narrow and control what is a truly unwieldy subject by framing the issues/readings in relation to the human body. Generally speaking, we will interrogate the ways in which technology engenders or erases bodily/human possibilities/capacities and especially the ethical and political ramifications that precipitate from the use/abuse of technology. We traverse a wide range of topics from the telegraph (and how it was used to speak with the dead) to the role of human enhancement technologies of today, to questions of surveillance and privacy, among many other topics.

I am pretty far along with the syllabus and pretty happy with it. So far I think I have struck a nice balance between fun/light/accessible readings and some which are bit more theoretically dense. I am still looking for one or two pieces, perhaps one on tattoos and body modification and another about karaoke. If anyone knows any great articles on these topics, do pass along the information.

I am probably most excited about the cluster of issues that address eugenics (and most students know next to nothing about America’s central role in unleashing the Eugenics’ movement), disability rights activism, human enhancement technologies, and transhumanism. Considering human enhancement in light of previous efforts to enhance our population brings into relief the similar and distinct ethical issues that haunt this field.

One of the most hot button issues of today concern the use of human enhancing drugs. The prestigious journal Nature has just published an editorial on the topic of cognitive enhancement drugs,Towards responsible use of cognitive-enhancing drugs by the healthy, which is a fairly interesting read and covers some of the main controversies.

For me, however, the interesting issue is not only whether human enhancement is right or wrong–though this is certainly important–but what our embrace of these drugs tell us about the conditions under which our bodies live and labor. That is, I think we are actually missing out on posing some other important questions simply by framing this int terms of human enhancement.

I suspect, and this is where ethnography would really help out, that many people turning to enhancement drugs may not be medically sick, in the technical sense but I don’t think they are healthy either. Many who turn to these drugs feel pretty worn, pretty exhausted, pretty frazzled (the perfect word, I think, is agotado, Spanish for exhausted) and use these drugs as crutches, as band-aids, as an elixir to help out one preserver in tough work circumstances. I am sure there are folks who take these drugs feel fine and are just trying to push their limits and capacities but I troll many many many patient support sites and it also seems to me that many people live under a state of low-grade chronic state of unwellness. Given the pace of society, given what and how we eat, given the extraordinary rates of depression in our society ,given the fact that babies are born with 200 + chemicals in their bodies (what a way to start out life) I am skeptical that enhancement really captures what is going on with these drugs.

I have not yet come up with the right term, but I am trying to come up with a phrase that would reflect the ways in which these drugs are not used as therapies for a discrete condition (Type 1 diabetes) but how they are a collective response to a state of low grade chronic unwellness that seems to mark the lives of a whole lot of people. This, I think, would be one responsible approach to human “enhancement” technologies that would contextualize their use within a much broader frame, one that is attuned to how bodies have been made, remade, and limited under actual material conditions of labor and life in the 21st century.

December 12, 2008

Outrageous

Category: Academic,Disability Studies,Hackers — Biella @ 6:52 pm

This person really is not happy I wrote about hacking on this disability blog.

HACKING?:??? PHREAKING???? These are all terms I have learned about from YEARS of investigating into HOW MY PRIVATE PHONE CONVERSATIONS COULD BE DISPLAYED BY SOMEONE IN A CHATROOM AND HOW SOME INDIVIDUAL COULD BOLDLY CLAIM MY LIFE AND HIS AND WITHOUT REMORSE ENGAGE IN THE MOST VICIOUS TYPE OF CYBERCRIMINALITY POSSIBLE, DEPENDING ON THE FLUIDITY OF THE LEGAL SYSTEM TO CONTINUE HIS ACTS.

I think your article is an outrage.

An outrage

July 10, 2008

Han Reiser and autism

Category: Disability Studies,Tech — Biella @ 1:09 pm

Autism Vox has a post about the recent autism defense for Han Reiser’s case. It will be interesting to see play out (and I am as baffled as she is about the Duckbill Platypus. Is it just supposed to be a stand-in for strange?)

May 19, 2008

Medical Genetics is Not Eugenics

Category: Disability Studies,Psychiatry,Tech — Biella @ 4:29 am

One of the most interesting debates concerning new technologies is whether human enhancement technologies have any resemblance to the older practice of eugenics. One of my favorite articles on this subject is by The Case against Perfection, which simply stunned my students (and they are pretty hard to stun).

Recently, the Chronicle of Higher Education published a couple of articles on the topic, and I wrote a response to one of them, (which as you will see, irked me some) here. While I agree with the author that medical genetics is not eugenics, it is still worth our while thinking through today’s genetic and reproductive technologies through the eyes of historical instance of eugenics.

May 13, 2008

What Sorts of People Should There Be?

Category: Academic,Disability Studies,Tech,What Sorts of People — Biella @ 2:01 pm

I am affiliated with a project whose origin is the northern parts of Canada, although whose members span the globe called What Sort of People Should There Be?. The idea behind this nifty and catchy title is to get a bunch of researchers in various fields, from disability studies to philosophy and everything that comes in between to start asking a series of questions about the role of human enhancement today and eugenics in the past, all within the context of thinking about the experience and politics of disability. I am super excited about the project because it spans the past and present to confront what it means to be human, how we value variation, how we seek to support or erase difference, and lastly something close to my academic heart, the role of technology in facilitating and dampening the politics of possibility and hope when it comes to disability.

The project has recently launched an multi-author blog and I will be posting there from time to time. If you are interested in this topic, do come by for a visit. I am sure you won’t be disappointed. My most recent post is here and it covers an interesting article in the New York Times on Mad Pride, which oddly enough is in the Fashion & Style section.

December 11, 2007

Two New Blogs

Category: Academic,Disability Studies,Tech — Biella @ 6:26 pm

For those who want to see NYC streets turned into more humane, hospitable and especially bike-friendly places, this blog is for you. I love NYC because of its active street life but there is certainly almost endless room for massive improvement and these folks are pushing just for that.

And for those involved in disability rights activism, Stop Eugenics looks like a good (and important) new blog.